Bohring Opitz Syndrome Awareness Day
Gallery
Where is Bohring Opitz Syndrome Awareness Day observed?
Bohring Opitz Awareness Day is observed worldwide.
Who is Bohring Opitz Syndrome Awareness Day observed by?
Bohring Opitz Awareness Day is observed by all those who want to support patients with Bohring Opitz syndrome. In particular, health organizations, doctors, patients, non-profit organizations, and individual volunteers observe this day.
When did Bohring Opitz Syndrome Awareness Day first start?
Bohring Opitz Syndrome Awareness Day was first started in the year 2015.
Who started the Bohring Opitz Syndrome Awareness Day?
Bohring Opitz Syndrome Awareness Day was started by Taylor Gurganus, co-founder of the BOS Foundation.
History And Timeline
Bohring Opitz Awareness Day is observed to support and help families and patients affected by Bohring Opitz syndrome. The day was founded by Taylor Gurganus, co-founder of the BOS Foundation.
Organization Of The Day
The co-founder of the BOS Foundation, Taylor Gurganus, organized BOS Awareness Day.
April 2015Meeting The Prime Minister
Canadian PM Justin Trudeau met a BOS patient and brought the attention of many to the condition.
2019BOS Fundraiser
A fundraiser was organized by the BOS Foundation, raising $15,000 to support 150 patients.
2019Financial Scholarship
Financial scholarships were given to students affected by BOS by the BOS Foundation.
2021Traditions And Customs
People observe BOS Awareness Day in various ways. People visit and support families and patients with Bohring Opitz syndrome. They also support the events conducted by the BOS Foundation. They help create awareness about this rare syndrome, Bohring Opitz syndrome. People also share on social media about the Bohring Opitz syndrome.
Ways To Observe Bohring Opitz Syndrome Awareness Day
There are various ways in which you can observe BOS Awareness Day.
You can assist patients with Bohring Opitz Syndrome, one of the rare diseases. You can teach and share knowledge about the rare syndrome, Bohring Opitz syndrome, with both the public and institutions and support research on BOS syndrome treatment.
You can share on social media about Bohring Opitz Syndrome and ask your friends and family to share information about the struggles and achievements of Bohring Opitz Syndrome patients.
You should raise awareness and encourage empathy towards BOS patients' brain abnormalities, developmental delays, silent aspiration, and sleep apnea. You can also support the BOS Foundation and its programs and awareness movement.
Facts And Stats
- Different fundraising events are organized across the world on Bohring Opitz Syndrome Awareness Day.
- BOS Awareness Day is observed on April 6 across the world. The date was selected as it is the anniversary of the formation of the Facebook group for BOS support on April 6, 2015.
- Taylor Gurganus is the person credited with starting the BOS Awareness Day.
- Other such awareness days include World Cerebral Palsy Day, World Health Day, and more.
Who originally directed Bohring Opitz Syndrome Awareness Day?
Taylor Gurganus, co-founder of the BOS Foundation, originally directed the Bohring Opitz Syndrome Awareness Day.
What are some advantages to observing Bohring Opitz Syndrome Awareness Day?
There are many advantages to observing Bohring Opitz Syndrome Awareness Day, like how people can support the families and patients of Bohring Opitz Syndrome and spread awareness related to Bohring Opitz Syndrome.
How are doctors promoting Bohring Opitz Syndrome Awareness Day?
Doctors conduct programs to make people aware of the Bohring Opitz Syndrome. The medical community supports patients and families with Bohring Opitz Syndrome and conducts research on BOS.
Who invented the concept of BOS Awareness Day?
Taylor Gurganus, co-founder of the BOS Foundation, invented the concept of BOS Awareness Day.
When Is This Day Celebrated
- Sunday, April 05, 2020
- Monday, April 05, 2021
- Tuesday, April 05, 2022
- Wednesday, April 05, 2023
- Friday, April 05, 2024
We Want Your Photos!
More for You
See All
Bachelor of Commerce, Master of Business Administration specializing in Marketing
Supriya JainBachelor of Commerce, Master of Business Administration specializing in Marketing
As a skilled member of the Kidadl team, Shruti brings extensive experience and expertise in professional content writing. With a Bachelor's degree in Commerce from Punjab University and an MBA in Business Administration from IMT Nagpur, Shruti has worked in diverse roles such as sales intern, content writer, executive trainee, and business development consultant. Her exceptional writing skills cover a wide range of areas, including SOP, SEO, B2B/B2C, and academic content.
Disclaimer
1) Kidadl is independent and to make our service free to you the reader we are supported by advertising. We hope you love our recommendations for products and services! What we suggest is selected independently by the Kidadl team. If you purchase using the Buy Now button we may earn a small commission. This does not influence our choices. Prices are correct and items are available at the time the article was published but we cannot guarantee that on the time of reading. Please note that Kidadl is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon. We also link to other websites, but are not responsible for their content.
2) At Kidadl, we strive to recommend the very best activities and events. We will always aim to give you accurate information at the date of publication - however, information does change, so it’s important you do your own research, double-check and make the decision that is right for your family. We recognise that not all activities and ideas are appropriate for all children and families or in all circumstances. Our recommended activities are based on age but these are a guide. We recommend that these ideas are used as inspiration, that ideas are undertaken with appropriate adult supervision, and that each adult uses their own discretion and knowledge of their children to consider the safety and suitability. Kidadl cannot accept liability for the execution of these ideas, and parental supervision is advised at all times, as safety is paramount. Anyone using the information provided by Kidadl does so at their own risk and we can not accept liability if things go wrong.
3) Because we are an educational resource, we have quotes and facts about a range of historical and modern figures. We do not endorse the actions of or rhetoric of all the people included in these collections, but we think they are important for growing minds to learn about under the guidance of parents or guardians.