This day is observed throughout the world. While the medicos observe this day by spreading awareness, others can simply try to gather information, raise awareness, and pledge to help the patients get the required treatment. People come together to raise awareness and celebrate the continuous advances in this disorder's treatment.
Who is World Hemophilia Day is observed by?
This day is observed by many people worldwide. It is observed by spreading awareness about hemophilia disease and other such genetic disorders, in schools, universities, or even other public places.
When did World Hemophilia Day first start?
This day was first observed on April 17, 1989, while the discovery of this genetic disorder was made in the 10th century.
Who started World Hemophilia Day?
The World Federation of Hemophilia, a non-profit international organization, is credited with initiating the World Hemophilia Day ritual to attract attention and spread awareness about this genetic blood disorder.
History And Timeline
What led to the development of such a day? Is there any organization to take care of the developments in this field? Read on to find out.
Discovery Of Hemophilia
It was during the 10th century that Haemophilia was first discovered.
10th Century
The first National Public Health Week was organized in April and was led by the APHA.
The first National Public Health Week was organized in April and was led by the APHA.
National Public Health Week
World Federation Of Haemophilia
It was in this year that Frank Schnabel started the World Federation of Hemophilia in 1963. A non-profit international organization working to improve the lives of hemophilic patients and to provide knowledge about these disorders.
1963
First World Haemophilia Day
On April 17, 1989, the World Federation of Haemophilia organized World Haemophilia Day for the first time in the world.
1989
Increasing Disease Awareness
World Federation Of Haemophilia now has 147 nations as members of this organization. This year's theme is 'Adapting to change: Sustaining care in a New World'. This highlights the need to stop striving and adapting to change in the wake of new developments.
2021
Traditions And Customs
The traditions and customs related to World Hemophilia Day are to spread awareness as much as the authorities, NGOs, hospitals, and other people can. Events are hosted to raise funds for patients with hemophilia who are underprivileged to get proper treatment.
As many as 75% of patients with hemophilia die due to unavailability of treatment or lack of knowledge, leading to ignorance of the problem altogether. This day is observed to highlight awareness about its symptoms, treatments, precautions, and access to medical facilities for the same.
While these things are done by organizations and authorities, ordinary people can donate and provide a helping hand in making a hemophilic patient’s life a tad bit better.
How To Observe World Hemophilia Day
Observing World Hemophilia Day is not that hard. One could use this day to donate to the cause, use their knowledge to spread awareness about this genetic disorder, and even support an underprivileged family by volunteering to help out the patients.
Even if one is not able to donate, joining an NGO, serving the patients, and working for the cause is a good way to observe this day. You can also host events and take them up on social media to help spread as much factual information as you can about the blood disorder.
Host seminars, webinars, informational sessions, and even camps to help people understand the seriousness of the issue and how each of us can contribute toward solving it.
As there is no treatment, only taking precautions and timely treatment is the way to ensure a healthy life for the patients, and for that to happen, early detection of the blood disorder is important.
The only option that we have is to keep tabs on the risk factor and follow the treatment closely to ensure a somewhat normal and healthy life.
Show your support for the New Year's theme by making your lighting red. The world has changed greatly in the wake of the new challenge posed by the coronavirus pandemic. It is, therefore, important to raise awareness of the coronavirus pandemic as well. Sharing knowledge makes ushering in the necessary changes easier.
Facts And Stats
In honor of World Hemophilia Day, social media platforms are making a major impact in raising awareness regarding bleeding disorders like this in the modern world.
This day is also special as it is the birth anniversary of Frank Schnabel, the founder of the World Federation of Hemophilia.
On World Hemophilia Day, it is important to promote wider public understanding regarding the challenges of the disease among new members of the community.
When is Hemophilia Awareness Day?
Hemophilia Awareness Day, or World Hemophilia Day, is observed on April 17 every year.
When is World Hemophilia Day?
World Hemophilia Day is an initiation of the World Federation of Hemophilia and has been observed on April 17 every year since 1989.
How to raise funds for World Hemophilia Day?
Earlier, fundraising was done by going door to door. Now, there are many ways, like raising funds through social media, organizing charity events, spreading awareness about how one can contribute to saving lives, and many more such ways. If someone is willing to donate, they can contact healthcare NGOs and non-profit organizations and donate as per their wish.
What are some of the advantages of World Hemophilia Day?
While we all know that hemophilia is a genetic blood disorder, there is a lot more to it than that. This day creates awareness of bleeding disorders and brings the global community together.
Who started World Hemophilia Day?
This day was started in 1989 by the World Federation of Hemophilia.
What is the involvement of hospitals in World Hemophilia Day?
Hospitals play various roles, like organizing awareness events, raising funds, and giving free treatments to underprivileged patients. The day is mostly dependent on hospitals.
When Is This Day Celebrated
Friday, April 17, 2020
Saturday, April 17, 2021
Sunday, April 17, 2022
Monday, April 17, 2023
Wednesday, April 17, 2024
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