World Hemophilia Day

Supriya Jain
Dec 22, 2023 By Supriya Jain
Originally Published on Feb 10, 2022
Fact-checked by Pratiti Nath
World Hemophilia Day creates awareness of the continuous advancement of Von Willebrand Disease.

Where is World Hemophilia Day observed?

This day is observed throughout the world. While the medicos observe this day by spreading awareness, others can simply try to gather information, raise awareness, and pledge to help the patients get the required treatment. People come together to raise awareness and celebrate the continuous advances in this disorder's treatment.

Who is World Hemophilia Day is observed by?

This day is observed by many people worldwide. It is observed by spreading awareness about hemophilia disease and other such genetic disorders, in schools, universities, or even other public places.

When did World Hemophilia Day first start?

This day was first observed on April 17, 1989, while the discovery of this genetic disorder was made in the 10th century.

Who started World Hemophilia Day?

The World Federation of Hemophilia, a non-profit international organization, is credited with initiating the World Hemophilia Day ritual to attract attention and spread awareness about this genetic blood disorder.

History And Timeline

What led to the development of such a day? Is there any organization to take care of the developments in this field? Read on to find out.

Discovery Of Hemophilia

It was during the 10th century that Haemophilia was first discovered.

10th Century

The first National Public Health Week was organized in April and was led by the APHA.

The first National Public Health Week was organized in April and was led by the APHA.

National Public Health Week

World Federation Of Haemophilia

It was in this year that Frank Schnabel started the World Federation of Hemophilia in 1963. A non-profit international organization working to improve the lives of hemophilic patients and to provide knowledge about these disorders.

1963

First World Haemophilia Day

On April 17, 1989, the World Federation of Haemophilia organized World Haemophilia Day for the first time in the world.

1989

Increasing Disease Awareness

World Federation Of Haemophilia now has 147 nations as members of this organization. This year's theme is 'Adapting to change: Sustaining care in a New World'. This highlights the need to stop striving and adapting to change in the wake of new developments.

2021

Traditions And Customs

The traditions and customs related to World Hemophilia Day are to spread awareness as much as the authorities, NGOs, hospitals, and other people can. Events are hosted to raise funds for patients with hemophilia who are underprivileged to get proper treatment.

As many as 75% of patients with hemophilia die due to unavailability of treatment or lack of knowledge, leading to ignorance of the problem altogether. This day is observed to highlight awareness about its symptoms, treatments, precautions, and access to medical facilities for the same.

While these things are done by organizations and authorities, ordinary people can donate and provide a helping hand in making a hemophilic patient’s life a tad bit better.

How To Observe World Hemophilia Day

Observing World Hemophilia Day is not that hard. One could use this day to donate to the cause, use their knowledge to spread awareness about this genetic disorder, and even support an underprivileged family by volunteering to help out the patients.

Even if one is not able to donate, joining an NGO, serving the patients, and working for the cause is a good way to observe this day. You can also host events and take them up on social media to help spread as much factual information as you can about the blood disorder.

Host seminars, webinars, informational sessions, and even camps to help people understand the seriousness of the issue and how each of us can contribute toward solving it.

As there is no treatment, only taking precautions and timely treatment is the way to ensure a healthy life for the patients, and for that to happen, early detection of the blood disorder is important.

The only option that we have is to keep tabs on the risk factor and follow the treatment closely to ensure a somewhat normal and healthy life.

Show your support for the New Year's theme by making your lighting red. The world has changed greatly in the wake of the new challenge posed by the coronavirus pandemic. It is, therefore, important to raise awareness of the coronavirus pandemic as well. Sharing knowledge makes ushering in the necessary changes easier.

Facts And Stats

  • In honor of World Hemophilia Day, social media platforms are making a major impact in raising awareness regarding bleeding disorders like this in the modern world.
  • This day is also special as it is the birth anniversary of Frank Schnabel, the founder of the World Federation of Hemophilia.
  • On World Hemophilia Day, it is important to promote wider public understanding regarding the challenges of the disease among new members of the community.

When is Hemophilia Awareness Day?

Hemophilia Awareness Day, or World Hemophilia Day, is observed on April 17 every year.

When is World Hemophilia Day?

World Hemophilia Day is an initiation of the World Federation of Hemophilia and has been observed on April 17 every year since 1989.

How to raise funds for World Hemophilia Day?

Earlier, fundraising was done by going door to door. Now, there are many ways, like raising funds through social media, organizing charity events, spreading awareness about how one can contribute to saving lives, and many more such ways. If someone is willing to donate, they can contact healthcare NGOs and non-profit organizations and donate as per their wish.

What are some of the advantages of World Hemophilia Day?

While we all know that hemophilia is a genetic blood disorder, there is a lot more to it than that. This day creates awareness of bleeding disorders and brings the global community together.

Who started World Hemophilia Day?

This day was started in 1989 by the World Federation of Hemophilia.

What is the involvement of hospitals in World Hemophilia Day?

Hospitals play various roles, like organizing awareness events, raising funds, and giving free treatments to underprivileged patients. The day is mostly dependent on hospitals.

When Is This Day Celebrated

  • Friday, April 17, 2020
  • Saturday, April 17, 2021
  • Sunday, April 17, 2022
  • Monday, April 17, 2023
  • Wednesday, April 17, 2024

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Written by Supriya Jain

Bachelor of Commerce, Master of Business Administration specializing in Marketing

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Supriya JainBachelor of Commerce, Master of Business Administration specializing in Marketing

As a skilled member of the Kidadl team, Shruti brings extensive experience and expertise in professional content writing. With a Bachelor's degree in Commerce from Punjab University and an MBA in Business Administration from IMT Nagpur, Shruti has worked in diverse roles such as sales intern, content writer, executive trainee, and business development consultant. Her exceptional writing skills cover a wide range of areas, including SOP, SEO, B2B/B2C, and academic content.

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Fact-checked by Pratiti Nath

Bachelor of Science specializing in Microbiology, Masters of Science specializing in Biotechnology

Pratiti Nath picture

Pratiti NathBachelor of Science specializing in Microbiology, Masters of Science specializing in Biotechnology

A Master's in Biotechnology from Presidency University and a Bachelor's in Microbiology from Calcutta University. Pratiti holds expertise in writing science and healthcare articles, and their inputs and feedback help writers create insightful content. They have interests in heritage, history, and climate change issues and have written articles for various websites across multiple subjects. Their experience also includes working with eco-friendly startups and climate-related NGOs.

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